Adrienne Asch, Ph.D., MS

Wellesley College
106 Central Street
Wellesley, MA 02481
(781) 283-3248 Fax (781) 283-3689
aasch@wellesley.edu

Education

1986-1987 Program in Family Therapy, Institute for Contemporary Psychotherapy, New York.

1981 Certificate in Psychoanalytic Psychotherapy, Institute for Contemporary Psychotherapy, New York.

1980 Certificate of Completion, Graduate Student Professional Development Program,
National Training Laboratories Institute for the Applied Behavioral Sciences.

1973 MS in Social Work, Community Organization and Planning, Columbia University School
of Social Work.

Employment

1994-2003 Henry R. Luce Professor in Biology, Ethics, and the Politics of Human Reproduction, Wellesley College.

Research and Policy Positions

1981-1985 Senior Human Rights Specialist, New York State Division of Human Rights.

1974-1977, Field Representative, New York State Division of Human Rights.
1981

Clinical and Consulting Positions

2000-present & 1997-1998: National Advisory Board Member, The Ethics Institute at Dartmouth College. Developed
undergraduate course: Ethical, Legal, and Social Implications of the Human Genome Project. Hanover, NH.

1999-2000 Consultant, Secretary's Advisory Committee on Genetic Testing, Department of Health
and Human Services, Washington, DC.

1995 Member, Social Security Administration National Commission on Childhood Disability.

1979-1992 Psychotherapist in private practice.

Spring 1991 Consultant, Project on Implications of Population Screening for Cystic Fibrosis, U.S. Congress Office of Technology Assessment, Washington, DC.

1979-1989 Human Relations trainer in private practice. Conducted workshops on intergroup relations for varied educational and human services organizations.

1985-1987 Consultant, Reproductive Laws for the 1990's, Rutgers Institute for Research on Women, Newark, NJ.

1981-1987 Staff Therapist, Institute for Contemporary Psychotherapy.

1978-1979 Conference Coordinator, Council on Social Work Education, New York. Coordinated three-day conference bringing together trade unions, corporations, and social work educators to discuss role of social work at the workplace.

Honors and Rewards

2003 Fellow, The Hastings Center.

2002 Barbara Waxman Fiduccia Memorial Award for Scholarship in Reproductive Ethics and Disability; Through the Looking Glass, 2nd International Conference on Parents and Disabilities.

2001 Honorary Doctor of Laws Degree, Swarthmore College, Swarthmore, PA.

Reseach Activities and Grant Support

Publications

In Press

Asch, A., (in press) [Review of The ethics of human gene therapy, by LeRoy Walters and Julie Gage Palmer]. In Politics and the Life Sciences.

Wasserman, D. & Asch, A. (in press) Where is the Sin in synecdoche: Prenatal testing and the parent-child relationship. Wasserman, D., Wachbroit, R., & Bickenbach, J. (Eds.), Quality of Life and Human Difference: Genetic Testing, Health Care, and Disability. New York: Cambridge University Press.

Books and Book-Length Publications

Alper, J., Ard, C., Asch, A., Beckwith, J., Conrad, P.,& Geller, L. N., (Eds.), (2002). The double-edged helix: Social implications of genetics in a diverse society. Baltimore, MD: Johns Hopkins University Press.

Parens, E. & Asch, A., (Eds.), (2000). Prenatal testing and disability rights. Washington, DC: Georgetown University Press.

Asch, A., as co-author with Schiff, A. R., the New Jersey Commission on Legal and Ethical Problems in the Delivery of Health Care (1992). After Baby M: The legal, ethical, and social dimensions of surrogacy. Trenton, NJ: The New Jersey Commission on Legal and Ethical Problems in the Delivery of Health Care.

Asch, A., as contributing member of the New Jersey Commission on Legal and Ethical Problems in the Delivery of Health Care (1990). Problems and approaches in health care decision making: The New Jersey experience. Trenton, NJ: The New Jersey Commission on Legal and Ethical Problems in the Delivery of Health Care.

Fine, M. & Asch, A. (Eds.) (1988). Women with disabilities: Essays in psychology, culture, and politics. Philadelphia: Temple University Press [recipient of the 1989 Distinguished Publications Award of the Association for Women in Psychology].

Asch, A. & Fine, M. (Eds.) (1988). Moving disability beyond "stigma": Social interaction, discrimination, and activism [Special Issue]. Journal of Social Issues, 44(1).

Asch, A., et al. (1984). Building community: A manual exploring issues of women and disability. New York: Educational Equity Concepts, Inc.

Peer Reviewed Journal Articles

Asch, A. (2003) Disability and genetics: A disability rights perspective. In D.N. Cooper et al. (Eds.), Nature Encylopedia of the Human Genome (vol. 2) (pp. 5-9). London: Nature Publishing Group.

Parens, E. & Asch, A (2003). Disability rights critique of prenatal genetic testing: Reflections and recommendations. Mental Retardation and Developmental Disabilities Research Reviews, 9(1), 40-47.

Asch, A. (2003). Disability equality and prenatal testing: Contradictory or compatible?, Florida State University Law Review, 30(2), 315-342.

Asch, A. (2001). Critical race theory, feminism, and disability: Reflections on social justice and personal identity. The Ohio State University Law Review, 62(89), 391-423.

Asch, A. (1999). Prenatal diagnosis and selective abortion: A challenge to practice and policy.
American Journal of Public Health, 89(11), 1649-1657. Excerpted in GeneWatch, 14(2), 5-7 & 14, 2001. Reprinted in Alper, J., Ard, C., Asch, A., Beckwith, J., Conrad, P., & Geller, L. N., (Eds), The double-edged helix: Social implications of genetics in a diverse society (pp. 123-150). Baltimore, MD: Johns Hopkins University Press, 2002. Excerpted in Steinbock, B., Arras, J. D., & London, A. J., (Eds), Ethical issues in modern medicine (6th ed.) (pp 523-533). New York: McGraw-Hill, 2003.

Parens, E. & Asch, A. (1999). The disability rights critique of prenatal genetic testing: Reflections and recommendations. The Hastings Center Report, 29(5) Supplement, S1-S22. Reprinted in E. Parens & A. Asch (Eds.), Prenatal testing and disability rights (pp. 3-43). Washington, DC: Georgetown University Press, 2000.

Asch, A. (1998). Distracted by disability. Cambridge Quarterly of Healthcare Ethics, 7(1), 77-87.

Asch, A. (1997). Women with disabilities: What do we know? What must we learn? Journal of Disability Policy Studies, 8(1,2), 239-242.

Mudrick, N. & Asch, A. (1996). Investigation and enforcement of a disability discrimination statute: Complaints of employment discrimination filed in New York state. Journal of Disability Policy Studies, 7(2), 21-41.

Asch, A. (1995). Parenthood and embodiment: Reflections on biology, intentionality, and autonomy. Graven Images, A Journal of Culture, Law, and the Sacred, 2, 229-236.

Fine, M. & Asch, A. (1988). Disability beyond stigma: Social interaction, discrimination, and activism. Journal of Social Issues, 44(1), 3-21. Reprinted in M. Nagler (Ed.), Perspectives on disability (1rst ed.), (pp. 61-74); (2nd ed.), (pp. 49-62). Palo Alto, CA: Health Markets Research, 1990, 1993. Reprinted in N. R. Goldberger & J. B. Veroff (Eds.), The Culture and Psychology Reader (pp. 536-558). New York: New York University Press, 1995.

Asch, A., as contributing member of The Hastings Center Project on Ethics and the Care of the imperiled Newborn (1987). Imperiled newborns [Special Issue]. Hastings Center Report,17(6), 5-32.

Asch, A., & Rousso, H. (1985). Therapists with disabilities: Theoretical and clinical issues. Psychiatry, 48(1), 1-12.

Asch, A. (1984). Personal reflections. American Psychologist, 39(5), 551-552.

Asch, A. (1984). The experience of disability: A challenge for psychology. American Psychologist, 39(5), 529-536.

Asch, A. & Sacks, L. (1983). Lives without, lives within: Autobiographies of blind women and men. Journal of Visual Impairment and Blindness, 77(6), 242-247.

Fine, M. & Asch, A. (1981). Disabled women: Sexism without the pedestal. Journal of Sociology and Social Welfare, 8(2), 233-248. Reprinted in M. Deegan & N. Brooks (Eds.), Women and disability: The Double Handicap (pp. 6-22). New Brunswick, NJ: Transaction Books, 1985.

Book Chapters

Asch, A., Gostin, L. O., & Johnson, D. M. (2003). Respecting persons with disabilities and preventing disability: Is there a conflict?. In S. S. Herr, L. O. Gostin, and H. H. Koh (Eds.), Different but equal: the rights of people with intellectual disabilities (pp. 319-346). New York: Oxford University Press.

Asch, A. & McCarthy, H. (2003). Infusing disability issues into the psychology curriculum. In P. Bronstein & K. Quina (Eds.), Teaching gender and multicultural awareness (2nd ed.) (pp. 253-269). Washington, DC: American Psychological Association.

Alper, J., Ard, C., Asch, A., Beckwith, J., Conrad, P., & Geller, L. N., (2002). Perspectives on perspectives. In Alper, J., Ard, C., Asch, A., Beckwith, J., Conrad, P., & Geller, L. N., (Eds), The double-edged helix: Social implications of genetics in a diverse society (pp. 1-16). Baltimore, MD: Johns Hopkins University Press.

Asch, A. (2002). Disability and reproductive rights. In J. A. Baer (Ed.), Historical and muliticultural encyclopedia of female reproductive rights in the United States (pp. 64-67). Westport, CT: Greenwood Press.

Asch, A., Perkins, T. S., Fine, M., & Rousso, H. (2001). Disabilities and women: Deconstructing myths and reconstructing realities. In J. Worell (Ed.), Encyclopedia of women and gender (pp. 345-354). San Diego, CA: Academic Press.

Asch, A., Rousso, H., & Jefferies, T. (2001). Beyond pedestals: The lives of girls and women with disabilities. In H. Rousso & M. L. Wehmeyer (Eds.), Double jeopardy: Addressing gender equity in special education (pp. 13-48). Albany: SUNY Press.

Asch, A. (2001). Disability, bioethics, and human rights. In G. L. Albrecht, K. D. Seelman, & M. Bury (Eds.), Handbook of disability studies (pp. 297-325). Thousand Oaks, CA: Sage Publications.

Asch, A. & Scotch, R. (2001). Disability politics. In J. Krieger (Ed.), The Oxford companion to politics of the world (2nd ed.) (pp. 223-225). New York: Oxford University Press.

Asch, A. (2000). Why I haven’t changed my mind about prenatal diagnosis: Reflections and refinements. In E. Parens & A. Asch (Eds.), Prenatal testing and disability rights (pp. 234-258). Washington, DC: Georgetown University Press.

Parens, E., Asch, A., & Powell, C. (2000). Reproduction, ethics, prenatal testing, and the disability
rights critique. In T. H. Murray & M. J. Mehlman (Eds.) Encyclopedia of ethical, legal, and policy
issues in biotechnology (pp. 957-969). New York: John Wiley & Sons.

Asch, A., Gartner, A., & Lipsky, D. K. (2000). Vision impairment, the environment, and the Americans
with Disabilities Act. In B. Silverstone, M. A. Lang, B. P. Rosenthal, & E. E. Faye (Eds.), The
lighthouse handbook on vision impairment and vision rehabilitation (pp. 569-574). New York, NY: Oxford University Press.

Asch, A. & Fine, M. (1997). Nurturance, sexuality and women with disabilities: The example of women and literature. In L. J. Davis (Ed.), The disability studies reader (pp. 241-259). New York, NY:Routledge.

Asch, A. (1996). Genetics and employment: More disability discrimination. In T. H. Murray, M. Rothstein & R. Murray (Eds.), The Human Genome Project and the future of health care (pp. 158-172). Bloomington, IN: Indiana University Press. Excerpted in GeneWatch, 11(5-6), 1999.

Asch, A. & Geller, G. (1996). Feminism, bioethics and genetics. In S. M. Wolf (Ed.), Feminism and bioethics: Beyond reproduction (pp. 318-350). New York: Oxford University Press.

Asch, A. (1995). Some thoughts for practicing bioethics: Extending the feminist critique. In M. Grodin (Ed.), Meta medical ethics: The philosophical foundations of bioethics (pp. 149-155). Boston, MA: Kluwer Academic Publishers.

Asch, A. (1995). Disability I: Attitudes and sociological perspectives. In W. T. Reich (Ed.), Encyclopedia of bioethics (pp. 602-608). New York: Macmillan Publishing Co.

Asch, A. & Mudrick, N. (1995). Disability. In R. L. Edwards (Ed.), Encyclopedia of social work (pp. 752-761). Washington, DC: NASW Press.

Asch, A. (1995). Visual impairment and blindness. In R. L. Edwards (Ed.), Encyclopedia of social
work (pp. 2461-2468). Washington, DC: NASW Press.

Asch, A. & Abelson, P. (1993). Serving workers through managed mental health care: The social work role. In P. Kurzman & S. Akabas (Eds.), Work and well being: The occupational social work advantage (pp. 123-137). Silver Spring, MD: NASW Press.

Asch, A. (1993). Abused or neglected clients--or abusive or neglectful service systems? In R. A. Kane & A. L. Caplan (Eds.), Ethical conflicts in the management of home care (pp. 113-121). New York: Springer Publishing Company.

Asch, A. (1993). Free to be a bigot. In R. A. Kane & A. L. Caplan (Eds.), Ethical conflicts in the management of home care (pp. 223- 231). New York: Springer Publishing Company.

Asch, A. & Watson, S. (1992). Legislation affecting disability management practices. In S. H. Akabas,
L. B. Gates & D. Galvin (Eds.), Disability management (pp. 22-64). Washington, DC: AMACON
Publishers.

Asch, A. (1990). The meeting of disability and bioethics: A beginning rapprochement. In B. S. Duncan & D. Woods (Eds.), Ethical issues in disability and rehabilitation: An international perspective (pp. 85-89). New York: World Rehabilitation Fund, World Institute on Disability and Rehabilitation International.

Asch, A. (1990). Surrogacy and the family: Social and value considerations. In D. Bartels, R. Priester, D. Vawter, & A. Caplan (Eds.), Beyond Baby M: Ethical issues in new reproductive techniques (pp. 243-259). Clifton, NJ: Humana Press.

Asch, A. (1989). Has the law made a difference? What some disabled students have to say. In D. K. Lipsky & A. Gartner (Eds.), Beyond separate education: Quality education for all (pp. 181-205). Baltimore, MD: Paul Brookes Publishers.

Ferguson, P. & Asch, A. (1989). Lessons from life: Personal and parental perspectives on school, childhood, and disability. In D. Biklen, D. Ferguson, & A. Ford (Eds.), Eighty-eighth yearbook of the National Society for the Study of Education, Part II: Schooling and disability (pp. 108-140). Chicago, IL: National Society for the Study of Education.

Asch, A. (1989). Reproductive technology and disability. In S. Cohen & N. Taub (Eds.), Reproductive
laws for the 1990s (pp. 69-124). Clifton, NJ: Humana Press.

Asch, A. (1988). Disability: Its place in the psychology curriculum. In P. Bronstein & K. Quina (Eds.), Teaching a psychology of people: Resources for gender and sociocultural awareness (pp. 156-167). Washington, DC: American Psychological Association.

Asch, A. (1988). Commentary on the case of Todd. In J. Hass, A. Caplan, & D. Callahan (Eds.), Case studies in ethics and medical rehabilitation (pp. 17-19). Briarcliff Manor, NY: The Hastings Center.

Asch, A. & Fine, M. (1988). Introduction: Beyond pedestals. In M. Fine & A. Asch (Eds.), Women with disabilities: Essays in psychology, culture, and politics (pp. 1-37). Philadelphia: Temple University Press. Reprinted as Beyond pedestals: Revisiting the lives of women with disabilities. In M. Fine, Disruptive voices: The possibilities of feminist research (pp. 139-171). Ann Arbor: University of Michigan Press, 1992.

Asch, A. (1986). Will populism empower disabled people? In H. Boyte & R. Riessman (Eds.), The new populism: The politics of empowerment (pp. 213-228). Philadelphia: Temple University Press. Reprinted as: Will populism empower the disabled? Social Policy, 16(3), 12-18, 1986.

Asch, A. (1985). Understanding and working with disability rights groups. In H. McCarthy (Ed), Complete guide to employing persons with disabilities (pp. 170-184). Albertson, NY: Human Resources Center.

Other Professional Publications

Asch, A. (2000). Comments on severe impairment and the beginning of life. The APA Newsletters, 99(2), 248-250.

Asch, A. (2000). Response to letter to the editor. American Journal of Public Health, 90 (9), 1477-1478. Asch, A., & Perrin, E. (1999). Op-ed letter: Readers respond to "Choosing NAIA". The Boston Globe, December 21, 1999 (3rd ed.), B4.

Asch, A. (1993). The human genome and disability rights: Thoughts for researchers and advocates.
Disability Studies Quarterly, 13(3), 3-5.

Asch, A. (1991). Bioethics thinking and disability rights. Disability Studies Quarterly, 11(2), 1-3.

Asch, A. (1987). What's missing (or what I haven't found yet). Disability Studies Quarterly, 7(4), 36-39.

Asch, A. (1986). On the question of Baby Doe. Health PAC Bulletin, 16(6), 5-10.

Asch, A. (1986). Real moral dilemmas. Christianity and Crisis, 46(10), 237-240. Reprinted as Can aborting "imperfect" children be immoral? in J. Arras & N. Rhoden (Eds.), Ethical issues in modern medicine (3rd ed), (pp. 317-321). Palo Alto, CA: Mayfield, 1989. Reprinted as Can aborting "imperfect" children be immoral? in J. Arras & B. Steinbock (Eds.), Ethical issues in modern medicine (4th ed.), (pp. 386-389); (5th ed.), (pp. 384-388). Mountain View, CA: Mayfield, 1995, 1999.

Asch, A., & Fine, M. (1986). Women and disability: Setting an agenda. Disability Studies Quarterly, 6(2), 1-2.

Asch, A., & Fine, M. (1984). Shared dreams: A left perspective on disability rights and reproductive rights. Radical America, 18(4), 51-58. Reprinted in M. Fine & A. Asch (Eds.), Women with disabilities: Essays in psychology, culture and politics, (pp. 297-305). Philadelphia: Temple University Press, 1988. Reprinted in M.G. Fried (Ed.), From abortion to reproductive freedom: Transforming a movement (pp. 233-240). Boston: South End Press, 1990.

Asch, A. (1984). Reagan and disabled people: From rights to charity. Health PAC Bulletin,15(4), 20-22.

Fine, M., & Asch, A. (1984). Amniocentesis, treatment of newborns with disabilities and women's choices. CARASA News, 8(4), 2-6.

Fine, M., & Asch, A. (1982). The question of disability: No easy answers for the women's movement. Reproductive Rights National Newsletter, 4(3), 19-20.

Monographs

Asch, A. (1980). Meeting human service needs at the workplace: A role for social work. Columbia University School of Social Work Industrial Social Welfare Center, Hunter College School of Social Work and Council on Social Work Education.

Asch, A. (1974). Issues in industrial social welfare: Summaries of student research projects. Columbia University School of Social Work Industrial Social Welfare Center.

Book Reviews and Book Essays

Asch, A., (2001). [Review of Thinking about the baby: Gender and Transitions into Parenthood, by Susan Walzer]. Feminist Approaches to Bioethics, 9(1), 10-11.

Asch, A. (2000). [Review of Preventing prenatal harm: Should the state intervene, by Deborah Mathieu]. Politics and the Life Sciences, 19(1), 126-127.

Asch, A., & Ossorio, P. (1994). More than purgatory, less than paradise? The promise of the Health Security Act. [Review of The President's Health Security Plan, by the White House Domestic Policy Council.] The Women's Review of Books, XI(10-11), 24-25.

Asch, A. (1987). The treatment of "handicapped newborns": A question with no simple answers. Disability Studies Quarterly, 7(2), 1-4.

Asch, A. (1986). Uncertain futures. [Review of The tentative pregnancy: Prenatal diagnosis and the future of motherhood, by Barbara Katz Rothman]. The Women's Review of Books, IV(2), 16.

Asch, A. (1986). [Review of The new our bodies, ourselves, by the Boston Women's Health Book Collective]. Disability Studies Quarterly, 6(2), 31-32.

Asch, A. (1985). Abortion in context [Review of Abortion: Understanding differences, edited by Sidney
Callahan & Daniel Callahan]. The Women's Review of Books, III(2), 12-13.

Asch, A. (1985). [Review of From good will to civil rights: Transforming federal disability policy, by Richard K. Scotch]. Disability and Chronic Disease Quarterly, 5(3), 23.

Fine, M., & Asch, A. (1985). Who owns the womb? [Review of Test tube women: What future for motherhood? edited by Rita Arditti, Renate Duelli Klein, & Shelley Minden]. The Women's Review of Books, II(8), 8-10.

SELECTED INVITED PRESENTATIONS

2004

January. Presenter: Critiques of Bioethics from Feminist and Disability Studies Perspectives. Bioethics Forum. Norwegian University of Science and Technology. Trondheim, Norway

January. Presenter: Ethical Issues and Assisted Reproductive Technologies. Reproductive Sciences Seminar Brown Bag Series. University of Michigan School of Public Health. Ann Arbor, MI.

January. Presenter: The Boundary between Genetic Enhancement and Disability Issues. Public Lecture. University of Michigan School of Public Health. Ann Arbor, MI.

January. Presenter: The Role of the Father in Abortion Decisions. Bioethics, Values and Society Faculty Lecture Series. University of Michigan School of Public Health. Ann Arbor, MI.

January. Presenter: Emerging Issues in Abortion: Beyond Pro-Life and Pro-Choice. Public Lecture. Center for Ethics in the Humanities and Life Sciences, Michigan State University. East Lansing, MI.

January. Presenter: The Disability Challenge to Traditional Bioethics. Center for Ethics in the Humanities and Life Sciences Spring 2004 Brown Bag Series. Center for Ethics in the Humanities and Life Sciences, Michigan State University. East Lansing, MI.

2003

December. Plenary Speaker: Discrimination through Prenatal and Preimplantation Diagnosis. Panelist: Care Relationships. Conference: Recognizing the Difference: Ethics and Disability - A Change of Perspective. International Conference in Berlin. Berlin, Germany.

April. Presenter: Surgically Shaping Children: Questions of Appearance and Reality. Saul O. Sidore Memorial Lecture Series 2002-2003: Educating Bodies - Culture, Power, and Socialization. University of New Hampshire.

April. Presenter: Promises and Perils of Human Cloning: Scientific, Ethical and Societal Perspectives.
Trinity College.

March. Panelist: Who Decides?: Reproductive Technologies, Ethics, and the Law. Mount Holyoke
College.

February. Presenter: Pre-birth and Post-birth Enhancement. Conference: Should Everyone Be Above Average? Medical Enhancement - Reconsidering the Promises. Oklahoma State University.

January. Presenter: Ethical Issues and Sex Selection. Program in Gender Studies. University of Texas at Dallas.

2002

December. Panelist: Prenatal Diagnosis and Selective Abortion: A Challenge to Practice and Policy. Workshop on Genetics and its Communities. Kennedy School of Government, Harvard University.

October. Presenter: Ethical Issues in Assisted Reproductive Technologies. Jo Ann S. Miller Memorial Lecture: Ethical Issues in Medicine. Alfred University.

September. Presenter: Bioethical Issues. 5th Annual Kaiser Permanente Symposium: Providing Culturally Competent Care for Our Members with Disabilities. Kaiser Foundation Rehabilitation Center. Oakland, CA.

May. Presenter: Licensing Parents: The Infertility Clinic as Health Service or Social Police. Ethics Grand Rounds Lecture Series. The University of Texas Southwestern Medical Center at Dallas.

April. Presenter: Selling Your Eggs and Other Issues in Commercializing Reproduction. University Center for Human Values DeCamp Bioethics Seminar. Princeton University.

April. Plenary Speaker: Who Speaks for Whom: Bioethics, Quality of Life, and Disability Rights. Narrating dis/ABILITY Conference. Syracuse University.

March. Panel Discussions: Reproductive Technologies; Designer Babies; Orphans of the AIDS Epidemic; and Gender and the AIDS Epidemic. Bioethics 2002: Facets of Humanity Conference. The Bioethics Society of Boston University.

2001

April. Interviewee: Delegation of the German Bundestag Study Commission on Law and Ethics in Modern Medicine.

March. Plenary Session: Critical Race Theory, Feminism, and Disability: Reflections on Social Justice and Personal Identity. Gender, and Disability Studies Conference. Institute for Research on Women, Rutgers University.

February. The Elizabeth Hastings Memorial Address Speaker: Sterilisation, Reproduction, and Parenthood for Women and Girls with Disabilities. International Conference: Disability with Attitude: Critical Issues 20 Years After International Year of Disabled Persons. Sydney, Australia.

2000

November. Presenter: Jacobus tenBroek: UC Berkeley's Pioneer in Civil Rights Theory and Action. Symposium: Intersections of Civil Rights and Social Movements. University of California at Berkeley.

October. Workshop Moderator: Religious and Ethical Issues. Conference: Seeking Compassion and Control: A Conference on the Maine Death with Dignity Act. Bangor, ME.

June. Colloquium Speaker: Commercializing Assisted Reproduction. The Hastings Center, Garrison, NY.

May. Presenter: The Interdisciplinarity of Disability Studies. Conference: A Multidisciplinary Academic Approach to Disability: An EMPOWER Conference. Harvard University.

April. Presenter: Reproductive Choices, Disability Rights. The Policy, Ethics and Life Sciences Research Institute, University of Newcastle in association with Disability North, Newcastle upon Tyne, UK.

March. Panelist: Medical Rationale for Genetic Testing of Adoptive Children: When? Why? Colloquium: Ethics of Genetic Testing in Adoption. University of Massachusetts-Boston.

January. Presenter: Moral and Ethical Issues in Disability Research. National Institute on Disability and Rehabilitation Research (NIDRR) Knowledge Building Conference: The New Paradigm on Disability: Research Issues and Approaches. Bethesda, MD.

1999

November. Presenter: A Case for Cross-Fertilization: Adoption and the Reproductive Technologies. Conference: Ethics and Adoption: Challenges for Today and the Future. The Evan B. Donaldson Adoption Institute, Anaheim, CA.

October. Health Care, Disability, and Ethics: A Discussion with Peter Singer and Adrienne Asch. Princeton University.

June. Presenter: Ethical Issues in Assisted Reproduction. Presenter: The Disability Critique of Prenatal Diagnosis. Physicians Seminar, University of Massachusetts Medical Center, Worcester, MA.

March. Presenter: Tampering with Nature: Dilemmas of the New Modes of Reproduction. University Distinguished Lecture Series, University of Maine at Presque Isle.

March. Presenter: Assisted Reproduction: Medical Necessity or Luxury. The Fraiman Lecture on Medical Ethics. The Cambridge Hospital, Cambridge, MA.

March. Presenter: Licensing Parents: Fertility Clinics as Social Police. The Lawrence Lader Lecture on Family Planning and Reproductive Rights, Harvard University Medical School.

1998

October. Presenter: Disability Studies in the United States. Japanese Council on Disability, Tokyo, Japan.

July. Presenter: The Disability Critique of Prenatal Diagnosis. Social Relations of Disability Seminar, Sydney, Australia.

July. Presenter: How Disability Complicates Gender. Winds of Change: Women and the Culture of Universities. University of Technology, Sydney, Australia.

July. Presenter: What's the Downside of Prenatal Diagnosis? Monash University, Centre for Human Bioethics, Melbourne, Australia.

July. Presenter: Ethical Issues in Assisted Reproduction. Deakin University, Melbourne, Australia.

April. Genetic Counseling and Prenatal Diagnosis: A Critique and some Proposals for Reform. Sarah Lawrence College.

1997

December. Presenter: Bioethics and Disability Issues. Conference: Disability Studies: Emerging Perspectives Through the Curriculum. Hunter College, CUNY.

November. Panelist: Ethical Issues. The Harvard International Conference on Euthanasia: End-of-Life- Care and Decision Making. Harvard University.

August. Plenary Speaker: ReDiscovering Cosmos: Science, Religion, and the Search for Human Integrity. Plenary: The Human Genome Project: Who Owns Our Genes? Council for Lutheran Campus Ministry, Syracuse University.

July. Guest Seminar: Funding Infertility Treatment and Assisted Reproduction. Ethics Fellows of the American Medical Association. Chicago, IL.

June. Presenter: Disability Rights. The National Institutes of Health, National Human Genome Research Institute. The Genetic Self: The Impact of the Human Genome Project on You and Your Practice. Baltimore, MD.

June. Presenter: Research and Disability Studies Workshop. International Leadership Forum for Women with Disabilities. Bethesda, MD.

March. Presenter: Funding New Reproductive Technology. Greenwall Fellowship Seminar, Johns Hopkins University.

March. Presenter: Some Ethical Questions about Prenatal Diagnosis. Medical Center Hour, Health
Sciences Center, Humanities in Medicine. University of Virginia.

March. Roundtable discussion on late term abortion: Ms. Magazine. Edited and published in May/June Issue of Ms. Magazine. New York, NY.

February. Presenter: Feminist Ethics. Lahey Hitchcock Clinic, Continuing Medical Education, Medical Ethics Lecture Series. Burlington, MA.

February. Presenter: The Business of Babymaking. Medical Humanities Program, Davidson College.

1996

November. Presenter: Ethical Issues in New Reproductive Technologies. College of Arts and Science and the School of Engineering sponsored Ethics and Technology Lecture Series. Widener University.

May. Panelist: Women and Genetics in Contemporary Society. The Procter Conference Center, London, OH.

April. Conference organizer and chair: Teen Pregnancy and Parenting: What is the Problem?, Wellesley College.

April. Panelist: Genetic Strategies for Exploring Human Aggression: Two Views of the Ethics, Methodology, and Purpose of Behavioral Research. Harvard University Medical School.

March. Panelist: Darwin and the Death of God? Workshop participant: Religion and Science, at the conference: Religion, Politics, and Society. Tufts University.

February. Panelist: Ethical Issues in the Practice of Infertility Medicine, at the Winter Symposium: Regulating Infertility Medicine. Dartmouth College.

1995

September. Chair, panel: The Prospects for Medical and Public Health Approaches to Crime and Violence. Panelist: What Can We Learn from Recent Precedents: the XYY and Psychosurgery Controversies, Genetic Screening, and DNA typing? Lessons from Veterans and Observers of earlier controversies. Conference on the Meaning and Significance of Research on Genetics and Criminal Behavior, University of Maryland.

May. Assisted Reproduction and Surrogacy: A Feminist Response to Feminist Criticism. Dartmouth College.

May. Panelist: Genetic Engineering, Disability, and the Definition of Disease, at conference Designing Our Descendants. University of Pennsylvania.

March. Work group facilitator: Preimplantation Diagnosis: What Can Be Done? What Should Be Done? Faulkner Centre for Reproductive Medicine, Boston, MA.

March. Presenter: Genethics: The Implications of Genetic Research and Engineering, at the conference: 20/20 Visions of the Future: Anticipating the Year 2020. Tufts University.

March. Perspectives on Reproductive Technologies. University of Texas at Austin.

February. The Other Side of the Right to Procreate: Questions about Alternative Insemination, In Vitro Fertilization, Surrogate Motherhood, and Other Forms of Assisted Reproduction. Center for Research on Women, Barnard College.

1994

October. Participant: Interdisciplinary Colloquy on Genetic Predisposition, U.S. Department of Energy, Washington, DC.

February. Is It Ever Too Late? Thoughts on Post-Menopausal Pregnancy. Paper presented at Case Western Reserve University Medical School.

February. Using Experience in Doing Ethics. Paper presented at Ethics Day, Case Western Reserve University.

1993

November. Sex Selection and Prenatal Diagnosis. Paper presented at Shriver Center, Waltham, MA.

June. Panelist: Cultural, Ethical and Political Dimensions of Disability, at Facing Heredity: Choices and Responsibilities, Brandeis University.

1992

December. Panelist: 3rd Annual Conference on the Right to Die, Boston University School of Public Health.

December. Testimony Before the United States Congress Office of Technology Assessment panel on Biomedical Ethics in U.S. Public Policy, Washington, DC.

1991

May. Ethical issues: Essential Concepts. Paper presented at the Administration on Developmental Disabilities Commissioner's Forum, Arlington, VA.

April. Social Factors in Access to Major Therapies. Paper presented at symposium, Extreme Measures, Extraordinary Benefits, at the University of Nebraska Medical Center.

1990

October. Promoting Equality: Implications of Gender Testing for All. Paper presented at Colorado Osteopathic Association, Colorado Springs, CO.

May. The Bioethics of New Reproductive Technologies. Paper presented at the New Jersey Bar Association Annual Meeting, Atlantic City, NJ.

April. Ethical Decision making. Paper presented at the Rehabilitation Issues Series, Kent State University.

April. Surrogate Motherhood and the New Jersey Bioethics Commission. Paper presented at the Advisory Board of the Center for Biomedical Ethics, Case Western Reserve University

1989

November. Great Expectations--Why We Have Children: For What Ends, By What Means? Luncheon address at Physicians for Responsibility in Medicine and Research, Boston, MA.

November. Panelist: What is the Role of Government in Forming Policy Concerning Assisted Reproduction and Other Bioethical Issues? Physicians for Responsibility in Medicine and Research, Boston, MA.

March. Ethics of Genetic Screening. Paper presented at symposium, Current Controversies, Bar Association of the City of New York, NY.

1986

June. Testimony Before the U.S. Commission on Civil Rights. Hearing Before the United States Commission on Civil Rights: Protection of Handicapped Newborns, Washington, DC.

1985

October. The Role of Disability in Treatment: Disabled Therapist/Nondisabled Patient; Nondisabled Therapist/Disabled Patient. Paper presented at the William Alanson White Institute, New York,
NY.

1984

May. Disability Politics in the 1980s: From Charity to Rights. Keynote paper presented at the Northeast Regional Hearings of the National Council on the Handicapped, New York, NY.

1982

2002

March. Invited Speaker: The Ethical Dilemmas Posed by ART, Human Genome Project and Molecular
Biology When Applied to Reproduction. 12th World Congress on In Vitro Fertilization and Molecular Reproduction. Buenos Aires, Argentina.

2001

January. Panel Presentation with E. Parens: The Disability Critique and Prenatal Testing. A Decade
of ELSI Research: A Celebration of the First Ten Years of the Ethical, Legal, and Social Implications (ELSI) Program, National Institutes of Health. Bethesda, MD.

November. Disability and Genetic Counseling at the Interface. Applying a Bioethics/Social Model
Approach to Disability and Genetic Counseling. National Society of Genetic Counselors 20th
Annual Education Conference: Current Advances - Anticipating Change. Washington, DC.

1999

October. Panelist: Severe Impairment and the Beginning of Life: Theory, and Policy. 2nd Annual Meeting, American Society for Bioethics and Humanities. Philadelphia, PA.

October. Invited panelist: Prenatal Testing for Genetic Disability. 2nd Annual Meeting, American Society for Bioethics and Humanities. Philadelphia, PA.

May. Panelist: Health, Disability, and Independent Living in the Graduate Public Health Curriculum. Disability Across the Disciplines, 12th Annual Meeting, Society for Disability Studies. Washington,DC.

May. Moderator: Interdisciplinary Explorations. Disability Across the Disciplines, 12th Annual Meeting, Society for Disability Studies. Washington, DC.

1998

November. Presenter: Social Science Contributions to Assisted Reproduction. Public Health and Managed Care, 126th Annual Meeting and Exposition, American Public Health Association. Washington, DC.

1997

November. Paper presented at symposium: Challenges to the Impairment Classification: Their Meaning, Scope and Policy Implications. The Joint Meeting of the American Association of
Bioethics, Society for Bioethics Consultation, and Society for Health and Human Values. Visions for Ethics & Humanities in a Changing Healthcare Environment. Baltimore, MD.

October. Presenter: Disability, Nurturance, and the Family: Good-enough Mothers and Perfect Children. American Studies Association Conference. Washington, DC.

May. Moderator, NIDRR Sponsored Session: Prenatal Testing for Genetic Disability. Moderator, NIDRR Sponsored Plenary: Variation? Discrimination? Can We Put Limits on Genetic Testing?
Moderator, NIDRR Sponsored Session: Why I Did or Didn't Have Amniocentesis and What It Might Have Meant.
Moderator, NIDRR Sponsored Session: What Is the Impact on Families of Life with Disabled Children? 10th Annual Meeting, Society for Disability Studies. Minneapolis, MN.

May. Moderator, Roundtable: Faculty with Disabilities. 10th Annual Meeting, Society for Disability Studies. Minneapolis, MN.

May. Moderator, Past, Present, and Future of SDS and the Field of Disability Studies. 10th Annual Meeting, Society for Disability Studies. Minneapolis, MN.

1996

November. Presenter: Parenthood, Intentionality, and Relationship. The First International Conference on Feminist Approaches to Bioethics. San Francisco, CA.

1995

November. Discussant: Invited Session Anthropology and the Bioethics of Invasive Technologies. Annual Meeting of the American Anthropological Association. Washington, DC.

October. Panelist: Irving K. Zola's Legacy for Disability Studies. 123rd Annual Meeting and Exhibition, American Public Health Association. San Diego, CA.

September. Panel moderator: Teen Pregnancy and Welfare Reform: Sorting Out the Issues. American Association of Bioethics, 1995 Annual Meeting. Philadelphia, PA.

August. Chair, Invited Symposium, Individual and Social Resilience to Discrimination. Paper: Fighting Discrimination: What Do We Know? What Should We

Learn? 103rd Annual Convention, American Psychological Association. New York, NY.

April. Attitudes Toward Regulating Life and Death: Abortion, Surrogate Motherhood, and Assisted Suicide. Annual Convention of the Eastern Psychological Association. Boston. MA.

1994

November. Panelist: Assisted Suicide: Respect for Autonomy and Personal Choice or Libertarian Control over Dying. 47th Annual Scientific Meeting, Gerontological Society of America. Atlanta, GA.

June. Panelist: Life and death issues: The Placement of "Do Not Resuscitate" Orders on Children with Disabilities. 7th Annual Meeting, Society for Disability Studies. Rockville, MD.

1993

August. Discussant: at symposium, Women Psychologists with Disabilities React to Contemporary Feminist Writings. 101st Annual Convention, American Psychological Association. Toronto.

1992

November. Panelist: Questioning the Status Quo: Feminist Perspectives on Issues in Bioethics. 120th Annual Meeting and Exhibition, American Public HealthAssociation. Washington, DC

1991

August. Values, Attitudes, and Public Policy: The Case of Surrogate Motherhood. Paper presented at roundtable, New Reproductive Technologies--Ethical Dilemmas and Public Attitudes. 99th Annual Convention, American Psychological Association. San Francisco, CA.

1990

August. Moral Dilemmas in Thinking About Contractual Parenting. Paper presented at symposium, Defining Justice: Moral Reasoning and Behavior across Social Contexts. 98th Annual Convention, American Psychological Association. Boston, MA.

1984

August. Is There a Woman's Voice in the Research Relationship? Paper presented at symposium, Women's Voices in the Research Relationship: Feminist Alternative to Objectivity. 102nd Annual Convention of the American Psychological Association. Toronto.

June. Disability and the Left: Organizing Strategies. Paper presented at symposium, Critical Perspectives in Leadership and Social Change--an Interdisciplinary Analysis, International Society of Political Psychology. Montreal.

Media Appearances

March, 2003. Commentator for "Troops Stop at Sperm Banks Before Shipping Out." All Things Considered, National Public Radio.

February, 2002. Panelist on "Making Better Babies: Genetics and Reproduction." Fred Friendly Seminars, Thirteen/WNET in New York, NY.

August, 2001. Panelist on Stem Cell Research. The Connection, Radio Station WBUR, Boston, MA.

March, 2001. Interview for German Television Documentary, Discussion of Genetic Issues. German Television Station ZDF at New York, NY.

January, 1998. Participant, Planet 24: Nothing but the Truth, "Court in Session Saturdays." Session 2, Program 1 "Eggs." Channel 4. London, England.

September, 1997. Participant in discussion of surrogate motherhood. The Leeza Show. NBC Television. Los Angeles, CA.

May, 1994. Participant, Brave New World of Reproductive Technology Debate, Open Media Television, "After Dark," London, England.

November, 1989. Panelist on gender selection for the Jane Wallace Show, Lifetime Television.

Professional Activities

National commissions, working groups, committees

2001- Member, ELSI Policy and Planning Group. National Human Genome Research present Institute, Baltimore, MD.

1993 Member, Bioethics Working Group of the Clinton Task Force on Health Care Reform, Washington, DC.

Professional and other public commissions, working groups, committees

2003 Member, "Ethical Decision-Making for Newborn Genetic Screening" The Hastings Center, Garrison, NY.

2002 Member, "Genetic Ties and the Future of the Family." The Hastings Center,Garrison, NY.

2002 Member, "Surgically Shaping Children." The Hastings Center, Garrison, NY.

2001- Member, "Genetic Testing, Disabilities and Quality of Life" project. University of present Maryland, College Park, MD.

2001- Member, "Reprogenics: A Blueprint for Meaningful Moral Debate and Responsible Public present Policy." The Hastings Center, Garrison, NY. Report published as: Reprogenetics and public policy: Reflections and recommendations. A Special Supplement to The Hastings Center Report, 33(4), 2003.

1998- Member, Ethics Advisory Group. The Evan B. Donaldson Adoption Institute, present New York, NY.

1995-1999 Member, Ethics Committee, The Faulkner Centre for Reproductive Medicine,Boston, MA.

1995- Member, Genetic Screening Study Group, Boston, MA.present

1993-1996 Member, Human Genetics Committee, Council for Responsible Genetics, Boston, MA.

1996-1999 Co-investigator with Erik Parens, Research Group, "Prenatal Testing for Genetic Disability." The Hastings Center, Briarcliff Manor, NY.

1995-1999 Member, Reproductive Issues Workshop, The Boston Psychoanalytic Institute,Boston, MA.

1996-1998 Member, Committee on Disability Issues in Psychology. American Psychological Association, Washington, DC.

1995-1997 Member, Research Group, "Project on Technologies Aimed at the Enhancement of Human Capacities." The Hastings Center, Briarcliff Manor, NY.

1996 Member, Research Group, "What Differences Make a Difference? Culture, End-of-Life Care, and Bioethics." The Hastings Center, Briarcliff Manor, NY.

1993-1994 Member, Advisory Board, Children's Hospital, Institute for Community Inclusion,Boston, MA.

1993 Participant, Invitational Conference on the Future of the Women's Movement, Center for Women Policy Studies, Washington, DC.

1993 NASW, Boston Chapter, Ethics On-Call Committee.

1993 Member, Boston Collective, Socialist Review.

1985-1992 Member, Equality Committee, American Civil Liberties Union, New York, NY.

1984-1992 Member, Committee on Receiving and Withholding of Medical Treatment, American Civil Liberties Union, New York, NY.

1984-1992 Member, Advisory Committee, World Rehabilitation Fund, New York, NY.

1990 Member, Research Group on Feminism and Bioethics, Hastings Center for Society, Ethics, and the Life Sciences, Briarcliff Manor, NY.

1989 Member, Health Policy Task Force, Society for the Psychological Study of Social Issues (SPSSI). Washington, DC.

1986-1987 Member, Research Group on Ethics and Rehabilitation, Institute for Society, Ethics, and the Life Sciences, Hastings-on Hudson, NY.

1984-1987 Member, Research Group on Ethics and the Care of the Imperiled Newborn, Institute for Society, Ethics, and the Life Sciences, Hastings-on-Hudson, NY.

1983-1984 Member, Steering Committee, 15th National Conference on Women and the Law, Los Angeles, CA.

Peer and grant review, editorial activities

1997- presen tEditorial Board, Ethics & Behavior.

1996- present Editorial Board, Microbial & Comparative Genomics.

1995-present Member Editorial Board: Families, Community, and Disability Series, Paul BrookesPublishers, Baltimore, MD.

1996 Reviewer, Law & Society.

1995 Peer Reviewer, National Institute for Disability and Rehabilitation Research, (NIDRR), Washington, DC.

1995 Reviewer, Social Science and Medicine.

1992 Reviewer, Journal of Social Issues, Special Issue on Health Policy, Vol. 49, No. 2.

1991 Grant Reviewer, Ethical, Legal, and Social Implications of the Human Genome Initiative (ELSI), U.S. Department of Energy.

1990 Editorial Board, Journal of Disability Policy Studies.

1989 Reviewer, Special Issues on "Feminism, Ethics, and Medicine," Hypatia, The Journal of Women and Philosophy, (Vol. 4, Nos. 2 and 3).

1983-1987 Associate Editor, Contemporary Psychotherapy Review.

Adjunct Teaching

2004 Lecturer, The Ethics of Biotechnology Before and During Pregnancy, Norwegian University of Science and Technology, Trondheim, Norway. Lectures: The Social Nature of Disability, Disease, and Genetics; PGD and Carrier Screening - Prevention without Abortion; Prenatal Diagnosis, Disability, and the Parent-Child Relationship.

2002 Member, Doctoral Dissertation Committee, Heller School, Brandeis University.

2002 Member, Master's Thesis Committee, Program in Genetic Counseling, Brandeis University.

2001 Member, Master's Thesis Committee, Program in Genetic Counseling, Brandeis University.

1999 Supervisor, Ethics Elective for Resident in Obstetrics/Gynecology, Beth Israel Deaconess Medical Center.

1999 Member, Doctoral Dissertation Committee, Johns Hopkins University School of Public Health.

1998 Advisor, Master's Thesis, Human Genetics Program, Sarah Lawrence College.

1996 Member, Doctoral Dissertation Committee, Heller School, Brandeis University.

1994-1995 Member, Doctoral Dissertation Committee, Harvard Graduate School of Education.

1994 Taught one-week course, "Disability and Difference." as Visiting Scholar at The
University of Buffalo Law School.

Summer Adjunct Lecturer, Women's Studies Program, University of Oregon. Taught seminar,
1991 "Feminist Issues in New Reproductive Technology."

1990-1991 Faculty Field Work Advisor, Columbia University School of Social Work.

Summer1986 Adjunct Lecturer, Department of Psychology, City College of New York.

Spring 1982 Adjunct Assistant Professor, Health and Society Program, Barnard College, Columbia 1983, 1985 University

Organizational Responsibilities

2001- presenBoard Member, American Society for Bioethics and Humanities.

2001-2003 Board Member, Council for Responsible Genetics.

2001 Co-Chair, Thirteenth Annual Bioethics Retreat, Hancock, MA.

2000-2002 Member, Membership Survey Task Force, American Society for Bioethics and Humanities.

2000-2001 Member, Program Committee, American Society for Bioethics and Humanities.

2000-2001 Co-chair, Task Force on Disability and Bioethics, American Society for Bioethics andHumanities.

2000-2002 Board Member, Society for Disability Studies.

1998-2002 Board Member, Boston Women's Health Book Collective.

1996-1998 President, Society for Disability Studies.

1995-1998 Board Member, Society for Disability Studies.

1993-1996 Member of Council, Society for Psychological Study of Social Issues (SPSSI).

1996 Co-chair, Annual Conference of the Society for Disability Studies, Washington, DC.

1990-1993 Board Member, Society for Disability Studies.

1987-1990 Board Member, New York Civil Liberties Union.

1986-1987 Board Member, National Abortion Rights Action League.